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Palliative
care in Malaysia
is impressively advanced given its relatively recent emergence as a recognized
medical specialization.
Hospis
Malaysia
provides professional palliative care to those living with life-limiting illnesses
which typically include cancers, Acquired Immune Deficiency Syndrome (AIDS),
organ failure or progressive neurological conditions.
Palliative
care works alongside curative treatment, but it correspondingly increases as
curative measures decline. The heart of its service lies in its philosophy –
which is to offer palliative care that effectively addresses the various needs
of patients and their families, and in the processes, ensures comfort and
dignity for those living with the illness, as well as the best quality of life
for them and for their loved ones.
Hospis
Malaysia
services include a homecare programme, daycare for patients and loan of medical
equipment. All the services and
facilitities are offered free-of-charge. The medical team of palliative care
doctors and nurses make approximately 1,000 home visits a mont h.
Dr
Edin Hamzah, the visionary Chief Executive of Hospis Malaysia
in Kuala Lumpur ,
is keen to point out, there are formidable challenges to be overcome if the
huge and ever-increasing needs and ever-increasing needs of local communities
are to be met.
He
says: “Malaysia n
healthcare needs a paradigm shift both in terms of planning services as well as
teaching doctors and nurses, all in the realization that at the root of all
illness, is a patient and a family that simply wants to have their fears
understood, their suffering to be emphatised, their words listened to and their
lives to have meaning. Palliative care can do this.”
Dr
Ednin and his nurse put these words into practice. As well as providing
medication and advising on physical on physical treatments, they spend a great
deal of time just getting to know the patients concerned. At no point do they
appear to be in a rush. Dr Ednin give patients plenty of time to ask questions
but does not force the patients to say anything. He also speak to their
families in a gentle manner but does not avoid “difficult” questions and is
honest when he does not know an answer.
In
short, patients and their families were treated with great respect; as “whole”
people who were gravely afflicted and affected by illness but not defined by
it. Whether a person with a life-limiting illness dies in a hospice or at home,
the aim remains the same: to give value and quality to that ind ividual’s life, however long or short it
is, by controlling the symptoms of their illness – especially pain – in a way
which neither hastens nor postpones death.
What
better way to died than peacefully, painlessly, and surrounded by friends and
family. Such a death is possible for many more of us that we realize. But we
need to think about it . Now.
Hospis
Malaysia
needs about RM3 million to dund the operating expenses annually.
More
information can be found on http://www.hospis-malaysia.org
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